Our Outcomes (hover over for more information):
Our Study Aims
These are our aims and the data we will collect
Hover over each aim to see how we will collect this:
Measured as a proportion of those who proceed after they receive their pre-test information
Uptake of Genetic Testing
Knowledge of BRCA-gene testing
We will use a study-specific questionnaire designed to test knowledge in key areas of genetic susceptibility awareness of breast and ovarian cancer
Anxiety around genetic testing
Measured with the Spielberger state-trait anxiety inventory 55 (STAI55) and the short form Intolerance of Uncertainty scale 56
Decline due to lack of access
Access to digital platform may be a reason patients decline. We assess this from a completed Expression of Interest form posted into the secure study hub boxes.
Test offer-to-results time
This is the time taken from offer of the genetic test to results being recieved - we will compare study timings to an audit of standard timing at each site.
We will operate a helpline patients can call 9-5, weekdays. Useage will be assessed from a central log of these calls.
Healthcare Professional Satisfaction
Assessed with a study-specific survey sent to involved healthcare professionals
Measured with a digital survey sent to patients after they receive their test results